Other Resources

Atypical HUS Information & Resources

An interactive site to meet other parents and converse with medical professionals: http://www.AtypicalHUS.org.

An article from a parent's perspective: A Diagnosis of Atypical HUS - Now What?

University of Iowa link for genetic testing: http://www.healthcare.uiowa.edu/labs/morl.

In partnership with NORD and Eurordis, The Atypical HUS Foundation announces the launch of its SOARING VOICES campaign. A global rare disease awareness project for Rare Disease Day on February 29th, 2012, Soaring Voices also serves to highlight the new patient communities at www.rarediseasecommunities.org.