Atypical Hus: The Foundation

The Foundation for Children with Atypical HUS is a 501c3 nonprofit organization dedicated to helping children and relatives of those who have been affected by this disease. The 3 primary goals of the organization are:
1) To furnish information to parents (and patients) about this rare but devastating disease.
2) To provide support by establishing a network throughout the world in which parents can communicate to one another and exchange opinions and experiences.
3) To provide funds for Medical research to find a better treatment or a cure.

The Disease
Atypical Hemolytic-uremic syndrome (HUS) is a syndrome characterized by three major problems areas: 1) progressive renal failure 2) problems associated with red blood cell and platelet counts and 3) problems that occur in the vascular system.
Atypical HUS should be differentiated from “regular or typical” HUS because the diseases have quite a few differences. Regular HUS is typically caused by the E-Coli virus, and while it is quite a severe disease, if the patient can recover from the disease, they may live the rest of their lives without another episode. Atypical HUS patients, however, frequently have recurring bouts with the disease.

What we are doing
Currently, our Foundation is funding two small studies on this disease, one in Italy, and one in Germany. We are the only private organization in existence today that is funding research on this disease, which afflicts an estimated 300 children in the United States. Each year, we hold a fundraiser to raise money for research. Approximately 500 people will attend the fundraiser. The fundraiser is a trivia night, silent auction and an oral auction all combined into one night of fun and entertainment.
Since we are a 100% volunteered based organization, all of the money will go directly to the funding source. Our website is www.ATYPICALHUS.50megs.com

Bill Biermann
Director 636 942 4425

Fundraisers

Ryan Still and the Auction
Hunter Burke and the Garlic Festival
Trivia Night 2004